Theoretical Model of Caregiving During Potentially Fatal Illness Case Study

CASE STUDY: Family Member with Alzheimer’s Disease: Mark and Jacqueline Mark and Jacqueline have been married for 30 years. They have grown children who live in another state. Jacqueline’s mother has moved in with the couple because she has Alzheimer’s disease. Jacqueline is an only child and always promised her mother that she would care for her in her old age. Her mother is unaware of her surroundings and often calls out for her daughter Jackie when Jacqueline is in the room. Jacqueline reassures her mother that she is there to help, but to no avail. Jacqueline is unable to visit her children on holidays because she must attend to her mother’s daily needs. She is reluctant to visit friends or even go out to a movie because of her mother’s care needs or because she is too tired. Even though she has eliminated most leisure activities with Mark, Jacqueline goes to bed at night with many of her caregiving tasks unfinished. She tries to visit with her mother during the day, but her mother rejects any contact with her daughter. Planning for the upcoming holidays seems impossible to Mark, because of his wife’s inability to focus on anything except her mother’s care. Jacqueline has difficulty sleeping at night and is unable to discuss plans even a few days in advance. She is unable to visit friends and is reluctant to have friends visit because of the unpredictable behavior of her mother and her need to attend to the daily care.

Reflective Questions

1. How do you think this situation reflects Jacqueline’s sense of role performance?

2. How do you think that Jacqueline may be contributing to her own health?

Expert Solution Preview

Introduction:
In this case study, we are presented with the situation of Jacqueline, who is the primary caregiver for her mother with Alzheimer’s disease. She is experiencing a significant impact on her daily life and relationships with her family and friends. As a medical professor, it is important to understand the challenges that caregivers face in providing care for individuals with Alzheimer’s disease.

1. How do you think this situation reflects Jacqueline’s sense of role performance?

Jacqueline may be experiencing a sense of role strain in her caregiving duties. She has eliminated most of her leisure activities and is unable to visit her children or pursue her personal interests. She also has difficulty sleeping at night, which can further impact her ability to carry out her caregiving duties. Jacqueline’s mother’s behavior is unpredictable, and she requires daily care, which can contribute to her sense of burden and stress.

2. How do you think that Jacqueline may be contributing to her own health?

Jacqueline’s caregiving responsibilities are likely contributing to her own health. She is unable to prioritize her own needs and may be experiencing stress, anxiety, and depression. Her inability to sleep and difficulty discussing plans with her husband can be signs of burnout. It is important for caregivers to seek support and prioritize self-care to maintain their own health and well-being.

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