Purpose: Select and research a healthcare registry that interests you. Summarize for your classmates its purpose, composition and desired outcomes. Identify areas where HIM can play an important role in the management of healthcare data.
Choose any registry that you are interested in (there are 100s). From this website (https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries)
Click here to go to a resource if you are stuck and need an idea. (https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries)
Start your research by reading 3-4 journal articles on your chosen registry or articles about challenges on maintaining a registry (data integrity, privacy and security, etc)
Search for your registry on YouTube and watch a video, if applicable.
Search for your registry on TedTalks and watch the presentation, if applicable.
Submit a 2-3 page paper (double spaced) for this assignment and then also go to the DB area and follow the instructions there as well.
In your paper let me know things like:
the basics of the registry
why it is being used
who uses it
when was it created
what examples can you think of where HIM can be effective in these areas
success story and/or interesting facts
please include all citations/resources used
Expert Solution Preview
Introduction:
Healthcare registries play a crucial role in collecting medical data and providing useful information to medical researchers, providers, and policymakers. In this paper, we will discuss the National Trauma Data Bank (NTDB) and its purpose, data composition, desired outcomes, and how the HIM (Health Information Management) profession can assist in managing the collected data.
National Trauma Data Bank (NTDB):
The National Trauma Data Bank (NTDB) is the world’s largest trauma registry that collects and maintains uniform data on hospitalized trauma patients in the United States. The NTDB was created in 1989, and it now has more than 8.1 million records of trauma patients from more than 800 trauma centers. Its primary purpose is to provide accurate and reliable data for analyzing trauma statistics, developing prevention programs, improving trauma care, and enhancing patient outcomes. The registry captures comprehensive data elements, including demographics, injury cause, severity, treatment, adverse events, and outcomes. These elements are maintained in a standardized format that allows easy comparison and analysis among different patient populations, trauma centers, and geographical regions.
Desired outcomes:
The data collected by the NTDB is used for research, quality improvement, and policy-making purposes. With the help of the registry, medical researchers can investigate the effectiveness of trauma treatments, identify high-risk patient groups, and develop evidence-based practice guidelines. Trauma centers can use NTDB data to benchmark their trauma care performance, identify areas for improvement, and create prevention programs to reduce injury rates. Policymakers can use the information to develop trauma systems, allocate resources, and improve the delivery of healthcare services to all trauma patients.
HIM role in managing healthcare data:
The HIM profession can play a vital role in managing the collected data in the NTDB. HIM professionals can ensure data integrity, privacy, security, and accuracy throughout the data collection and management process. They can develop and implement policies and procedures to ensure compliance with legal and regulatory requirements such as HIPAA. They can also analyze and interpret the data to identify trends, patterns, and outliers that could inform clinical decision-making, quality improvement, and prevention programs. Additionally, HIM professionals can assist in data reporting and dissemination to improve the quality of trauma care and patient outcomes.
Success Story:
The NTDB has been used to demonstrate the efficacy of trauma centers in improving trauma care and reducing mortality rates. According to a study published in the Journal of Trauma and Acute Care Surgery, patients treated in trauma centers that participate in the NTDB had a 25% reduction in mortality rates compared to those treated in non-NTDB centers. This finding was attributed to the NTDB’s ability to capture comprehensive and reliable data that can be used to inform trauma care providers and improve patient outcomes.
Conclusion:
In conclusion, the National Trauma Data Bank (NTDB) is an essential healthcare registry that collects and maintains comprehensive and reliable trauma data from different patient populations, trauma centers, and geographical regions. The registry’s purpose is to provide accurate and reliable data for analyzing trauma statistics, developing prevention programs, improving trauma care, and enhancing patient outcomes. The HIM profession can play a significant role in managing the collected data, ensuring data integrity, privacy, security, accuracy, and compliance with legal and regulatory requirements. The success story of the NTDB demonstrates the registry’s impact on improving trauma care and reducing mortality rates.